Name Leigh Syndrome
Related to/Also known as  
  • Leigh's Disease
  • Leigh's Syndrome
  • Necrotizing encephalopathy
  • Subacute Necrotizing Encephalomyelopathy (SNEM)
  • Mitochondrial disease

see also Rare Conditions

Symptoms of Leigh Syndrome

Leigh Syndrome is a rare, inherited, early-onset degenerative disorder with many different symptoms.

This is a disease of the mitochondria, which provide energy for nerve cells in the brain and muscles.

Types X-linked Leigh Disease
Useful national contacts The Leigh Network (Facebook)
Link opens in new window https://tinyurl.com/yaeud4ec

Climb (Children Living with Inherited Metabolic Diseases)
Link opens in new window www.climb.org.uk
Freephone 0800 652 3181
The Rare Mitochondrial Disease Service for Adults and Children (NHS)
Link opens in new window www.mitochondrialncg.nhs.uk
News and events  
Online resources Leigh's Disease Information Page (U.S. National Institute for Neurological Disorders and Stroke)
Link opens in new window https://tinyurl.com/ybh4rabh
Our resources The library at The Brain Charity has a range of resources on Leigh's Disease and on a wide range of disability-related issues.