|Related to/Also known as||Spinal Dysraphism
|Symptoms of Spina Bifida
||Spina Bifida (split spine) is a fault in the spinal column, in which one or more of the vertebrae fail to form properly, thereby leaving a gap. It occurs early in pregnancy and is therefore present at birth.|
Spina Bifida Occulta is a very mild form, which may only be evident as dimpling of the skin or a hairy patch.
Spina Bifida Cystica is a form where a sac or cyst is visible on the back. If the sac contains nerves and part of the spinal cord, it is known as a Myelomeningocele and will result in some degree of paralysis and disability. If it contains tissue and cerebro-spinal fluid, it is called a Meningocoele and is unlikely to cause disability.
Hydrocephalus is a build-up of C.S.F. (cerebro-spinal fluid) in the brain, and many people with Spina Bifida have Hydrocephalus.
|Useful national contacts||
Scottish Spina Bifida Association
|Children & young people||
Advice for parents (Shine)
Covid 19 (Coronavirus) - Information for Shine Members (Shine)
Spina bifida (NHS Choices)
Spina bifida (Contact, charity for families with disabled children)
The library at The Brain Charity has a range of resources on Spina Bifida and on a wide range of disability-related issues.
This includes the ASBAH booklet for teenagers 'Below The Belt: Teen-talk: continence, relationships and much more'.