Name  Acoustic Neuroma 
Related to/Also known as  Vestibular Schwannoma
Symptoms of Acoustic Neuroma
A slow growing benign brain tumour (non-cancerous). First symptoms are usually hearing loss or tinnitus, and, more rarely, balance problems.
Useful national contacts British Acoustic Neuroma Association

Tel. 0800 652 3143
Link opens in new window www.bana-uk.com
Find your local support group:
Link opens in new window www.bana-uk.com/resources/our-branches

Children & young people Meet Gemma (Nerve Tumours UK)
Link opens in new window https://tinyurl.com/y66zje64
Online resources

Acoustic neuroma (vestibular schwannoma) (NHS Choices website)
Link opens in new window https://tinyurl.com/yceq8g96

Acoustic neuroma and driving (Gov.uk)
Link opens in new window www.gov.uk/acoustic-neuroma-and-driving

News and events  
Our resources

The library at the Brain Charity has a range of resources on Acoustic Neuroma and on a wide range of disability related issues.

Name  Alice in Wonderland Syndrome (AIWS)
Related to/Also known as 

Todd Syndrome

Migraine, Migraine aura
Epilepsy
Brain Tumour

Symptoms of AIWS

"Case reports illustrate a cluster of related symptoms. Most often, a perception of becoming physically smaller or physically larger in comparison to surroundings is the central detail. However, there may be an impression that a person's surroundings are growing or shrinking rather than the person himself. Other narratives include distortions in visual awareness, including the sense that fixed surroundings are moving."

Source: Neurology Times, August 2016)
https://tinyurl.com/yydl7mbu

Useful national contacts The Migraine Trust (Migraine Action has merged with the Migraine Trust)
Tel: 020 7631 6970
Link opens in new window www.migrainetrust.org
Children & young people Alice in Wonderland syndrome: A rare neurological manifestation with microscopy in a 6-year-old child (U.S. National Library of Medicine, National Institutes of Health)
Link opens in new window https://tinyurl.com/z5l84wv
Online AIWS resources

The Alice in Wonderland syndrome (PubMed)
Link opens in new window www.ncbi.nlm.nih.gov/pubmed/10767914

"I have Alice in Wonderland syndrome" (The Guardian newspaper, 2008)
Link opens in new window https://tinyurl.com/y9neb3fg

Syndrome: Tumbling into Wonderland (BlueSci: Cambridge University Science Magazine, March 2017)
Link opens in new window https://tinyurl.com/y3zyoqr6

OurAIWS resources

The library at the Brain Charity has a range of resources on Alice in Wonderland Syndrome  (AIWS) and on a wide range of disability related issues.

Visit our library to read our copy of the Brain and Spine Foundation's booklet on Migraine, which includes information on Migraine Aura.

Name Alzheimer's
Related to/Also known as Dementia
Symptoms of Alzheimer's

Dementia is a term used to describe various different brain disorders, that have in common a loss of brain function that is usually progressive and eventually severe.

The most common type of dementia is Alzheimer's Disease.

Symptoms of dementia include loss of memory, confusion and problems with speech.

Types There are over 100 different types of dementia, including Alzheimer's Disease. For more information see the Alzheimer's Society website Link opens in new window
Useful national contacts

Alzheimer's Society (England, Wales and Northern Ireland)
Link opens in new window www.alzheimers.org.uk
Helpline: 0300 222 1122
Find your local support service:
Link opens in new window https://tinyurl.com/y7djjylb

Carer Information and Support Programme (CrISP)
Link opens in new window https://tinyurl.com/y89h96xa


Alzheimer's Scotland
Link opens in new window www.alzscot.org
Helpline: 0808 808 3000
Find your local support service:
Link opens in new window https://tinyurl.com/y7he4ptr


Dementia Research (NHS National Institute for Health Research)
Join dementia research - register your interest in dementia research
Link opens in new window www.joindementiaresearch.nihr.ac.uk

Children & young people 

Explaining dementia to children and young people (Alzheimer's Society)
Link opens in new window https://tinyurl.com/y4bcceg4

Resources for Children and Young People (Dementia UK)
Link opens in new window www.dementiauk.org/children-and-young-people

Online  resources Alzheimer's disease (NHS website)
Link opens in new window www.nhs.uk/conditions/alzheimers-disease
News and events  
Our resources Talking To Children About Your Illness

The library at The Brain Charity has a range of  resources on Alzheimer's and on a wide range of disability related issues.

Visit our library to read our copy of the Alzheimer's Society's booklet "Talking To Children About Your Illness".

Name Aneurysm
Related to/Also known as See also Subarachnoid Haemorrhage (S.A.H.)
Symptoms of Aneurysm
A brain aneurysm is a balloon-like swelling resulting from a weakness in the wall of one of the blood vessels supplying blood to the brain.
Types If the aneurysm bursts/ruptures that results in a bleed this is brain haemorrhage.
Useful national contacts BASIC (Brain and Spinal Injury Charity)
Link opens in new window www.basiccharity.org.uk
Helpline: 0870 750 000

Brain and Spine Foundation
Link opens in new window www.brainandspine.org.uk
Helpline: 0808 808 1000
Children & young people "Aneurysms in children under 18 years of age are rare".
Pediatric Aneurysms (U.S. Brain Aneurysm Foundation)
Link opens in new window https://tinyurl.com/yxoqqpzz
Online resources Brain aneurysm (NHS Choices website)
Link opens in new window https://tinyurl.com/y877n4bv
Our resources What is a brain aneurysm?

The library at The Brain Charity has a range of resources on Aneurysm and on a wide-range of disability related issues.

Visit our library to read our copy of the U.S. Brain Aneurysm Foundation's Youth Fact Sheet 'What is a brain aneurysm?'.

Name  Angelman Syndrome
Related to/Also known as   
Symptoms of Angelman Syndrome

"This is a rare condition [ ... ] children have epilepsy, learning difficulties, severe speech delay, jerky movements, tongue-thrusting, a characteristic facial appearance and a happy mood with sudden bursts of laughter.  The condition is caused by a genetic factor ... "

Source:  Joint Epilepsy Council

Useful national contacts

AngelmanUK
Link opens in new window http://angelmanuk.org
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Support line:  0300 999 0102

Children & young people Sibling support (AngelmanUK)
Link opens in new window https://tinyurl.com/y6bu3j3y
Online resources

Angelman syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/yaqtmygj


Angelman syndrome (Contact A Family)
Link opens in new window https://tinyurl.com/yan33oj9


Angelman syndrome (Epilepsy Action)
Link opens in new window https://tinyurl.com/y8n87cna

Our resources

The library at The Brain Charity has a wide range of resources on disability related issues.

Name  Ankylosing Spondylitis (AS)
Related to/Also known as   
Symptoms of Ankylosing Spondylitis

"AS is an inflammatory form of back pain that can also affect other parts of the body, including joints, tendons and eyes, and occurs most frequently in young men."

Source:Link opens in new window Arthritis Research UK

Useful national contacts

NASS (National Ankylosing Spondylitis Society)
Phone:  020 8741 15 15, 9.00-12.00 Monday-Friday
Link opens in new window http://nass.co.uk
Find your local branch:
Link opens in new window https://tinyurl.com/y3u7fold


Rare Disease UK
Link opens in new window www.raredisease.org.uk
Children and yound people Juvenile Ankylosing Spondylitis (Stanford Children's Health, U.S.)
Link opens in new window https://tinyurl.com/y5t8r5t2
News and events  
Online resources

Ankylosing spondylitis (NHS Choices)
Link opens in new window https://tinyurl.com/yc7d8ggj


Cochrane Evidence: Physiotherapy for ankylosing spondylitis
Link opens in new window https://tinyurl.com/y7jh2rtm

Ankylosing spondylitis (AS) (Arthritis Research UK)
Link opens in new window https://tinyurl.com/y8mwfb5u

Our resources

The library at The Brain Charity has a range of resources on Ankylosing Spondylitis and on a wide range of disability related issues.

Visit our library to read our copy of the Pain Relief Foundation's booklet on Arthritis, which includes information about Ankylosing Spondylitis.

Name  Antiphospholipid Syndrome (APS)
Related to/Also known as  Hughes Syndrome
Sticky Blood Syndrome
Symptoms of Antiphospholipid Syndrome
APS is sometimes called 'sticky blood syndrome'. This is because people with it have an increased tendency to form clots in blood vessels (also known as thromboses). Any blood vessel can be affected including the veins and the arteries.
Useful national contacts APS Support UK (formerly Hughes Syndrome Foundation)
Link opens in new window www.aps-support.org.uk/index.php
Tel: 0300 323 9943
Children & young people Antiphospholipid Syndrome (Riley Children's Health, U.S.)
Link opens in new window https://tinyurl.com/y6fvuuzn
Online resources

Antiphospholipid Syndrome (APS) (NHS Choices)
Link opens in new window  https://tinyurl.com/yces9app

"Hughes Syndrome: simple to treat but all too often ignored" (Daily Telegraph, February 2009)
Link opens in new window https://tinyurl.com/y63b9qpp

Our resources

The library at the Brain Charity has a range of resources on Antiphospholipid Syndrome and on a wide range of disability related issues.

Name Aphasia
Related to/Also known as Dysphasia
Symptoms of Aphasia
Aphasia is an acquired disorder of language, usually caused by stroke, head injury or other neurological condition. People with aphasia find it difficult to understand, speak, read or write language; yet their intellect remains intact.
Types  
Useful national contacts

Stroke Association
Link opens in new window www.stroke.org.uk
Helpline: 0303 303 3100
Find your local support group:
Link opens in new window www.stroke.org.uk/finding-support/support-services


Aphasia Re-Connect
Link opens in new window www.aphasiareconnect.org

Children & young people

I CAN
For parents, practitioners and the children with speech and language difficulties
I CAN Help Enquiry Service: 020 7843 2544
Link opens in new window www.ican.org.uk


Afasic
Parents' Helpline 0300 666 9410 Monday & Wednesday: 10.30am to 4.00pm.
Link opens in new window www.afasic.org.uk


Language Disorders: Aphasia (Royal Children's Hospital Melbourne)
Link opens in new window https://tinyurl.com/yxh8sl7o

News and events

Neuro Device, a Polish company, has developed an innovative rehabilitation system for people with post-stroke aphasia (April 2018)

 Link opens in new window https://tinyurl.com/yb3g8lck

You can watch the Polish ambassador to Britain talking about this on YouTube:
Link opens in new window www.youtube.com/watch?v=Mv987r23C-M

Online resources Aphasia (NHS Choices)
Link opens in new window https://tinyurl.com/y92oory4

Aphasia (Contact A Family)
Link opens in new window https://tinyurl.com/yao2t52j
Our resources Children With Acquired Aphasias

The library at The Brain Charity has a range of resources on Aphasia and on a wide range of disability related issues.

Visit our library to read the book Children with Acquired Aphasias by Janet A. Lees.

Name Arachnoiditis
Related to/Also known as  
Symptoms of Arachnoiditis

Arachnoiditis describes inflammation which occurs inside the spine, around the spinal cord and spinal nerve roots. Can develop after back injury, spinal surgery, infections such as meningitis, and sometimes after injections into the spine.

Pain comes from nerve roots and generally impacts the lower parts of the body, but can affect the spine in the head, neck and upper back. Damaged nerve roots can cause muscle spasms and jerks, and weakness of muscles.

Types  
Useful national contacts The A Word Support Group
Link opens in new window www.theaword.org

Children & young people

Arachnoiditis (Child Neurology Foundation, U.S.)
Link opens in new window https://tinyurl.com/yy9p697g
Online resources Arachnoiditis (Patient.info)
Link opens in new window http://patient.info/directory/arachnoiditis
Arachnoiditis (U.S National Organization for Rare Disorders)
Link opens in new window https://tinyurl.com/ya35xw9x

Arachnoiditis (U.S. National Institute of Neurological Disorders and Stroke)
Link opens in new window https://tinyurl.com/kz6sf
Our resources

The library at The Brain Charity has a range of resources on Arachnoiditis and on a wide range of disability related issues.

This includes a copy of the Arachnoid Trust's booklet What is Arachnoiditis?  by Lina Talbot.

Name Arteriovenous Malformation (AVM)
Related to/Also known as Arteriovenous Fistula (AVF)
Angioma
Arteriovenous Anomaly
Cavernous Malformation
Venous Malformation
Pulmonary Arteriovenous Malformations (PAVM)
Symptoms of Arteriovenous Malformation
AVMs can occur in the brain, spine, lungs, kidneys and the skin. They occur following the abnormal development of blood vessels, which produces a tangle of blood vessels.
Types  
Useful national contacts  
Children & young people

Arteriovenous Malformations (for Parents) (KidsHealth website)
Link opens in new window https://tinyurl.com/yxat2ooc

Venous malformations (Great Ormond Street Hospital)
Link opens in new window https://tinyurl.com/y48mulks

Online resources

Arteriovenous Malformation (AVM) (The Birthmark Support Group website)
Link opens in new window https://tinyurl.com/ya3k2x7h

Arteriovenous malformation and driving (GOV.UK)
You must tell the DVLA if you have an arteriovenous malformation
Link opens in new window https://tinyurl.com/ya3k2x7h

Vascular malformations of the brain (Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/yxmenbgf

Arteriovenous Malformation Information Page (U.S National Institute for Neurologogical Disorders and Stroke)
Link opens in new window https://tinyurl.com/y2t2ll3n

Our resources

The library at The Brain Charity has a range of resources on Arteriovenous Malformation (AVM) and on a wide range of disability related issues.

This includes a copy of the Brain & Spine Foundation's booklet "Vascular Malformations Of The Brain".

Name Arthritis
Related to/Also known as Inflammatory Arthritis
Osteoarthritis
Rheumatoid Arthritis
Symptoms of Arthritis

Arthritis is a condition involving inflammation of the joints, which may then become very painful.

Note that Arthritis is not a neurological condition; however, there are several conditions that come under both Arthritis and Neurological Conditions as an 'umbrella' term.

Types

There are over 200 different types of arthritis.

The most common is Osteoarthritis, which usually develops gradually over a few years.

Rheumatoid Arthritis is a condition which causes the joints in your body to become inflamed. It can be persistent or occur in flare-ups.

Useful national contacts

Arthritis Care and Arthritis Research UK have joined forces and are now Versus Arthritis
Link opens in new window www.versusarthritis.org
Free helpline 0800 5200 520, Monday-Friday, 9.00a.m.-8.00p.m. 
Find your local support group:
Link opens in new window www.arthritiscare.org.uk/in-your-area


N.R.A.S. National Rheumatoid Arthritis Society
Link opens in new window www.nras.org.uk
Helpline: 0800 298 7650
Find your local support group:
Link opens in new window www.nras.org.uk/groups
Children & young people 

Young people (Versus Arthritis)
Support for children and young people
Link opens in new window https://tinyurl.com/y22ebufv
• Look for groups and activities for young people and families: https://tinyurl.com/y4urupj2

Online resources Arthritis (NHS Choices website)
Link opens in new window www.nhs.uk/conditions/arthritis/pages/introduction.aspx
Arthritis (PubMed Health website)
Link opens in new window www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0024677/
The Rheumatoid Arthritis Support Network
An American organisation with lots of information on their website
Link opens in new window www.rheumatoidarthritis.org
Our resources

The library at The Brain Charity has a range of resources on Arthritis and on a wide-range of disability related issues.

This includes copies of booklets by Arthritis Research UK.

Name Asperger's Syndrome
Related to/Also known as Autism Spectrum Disorders
Autism
Symptoms of Asperger's Syndrome

Asperger's Syndrome is a form of autism, a condition which affects the way a person communicates and relates to others.

People with Asperger's Syndrome have difficulty in communicating and with social relationships, and exhibit a lack of imagination and creative play. They have fewer problems with language compared with those with autism, and do not usually have the accompanying learning difficulties associated with autism.

Types  
Useful national contacts Asperger's Syndrome Foundation
Link opens in new window www.aspergerfoundation.org.uk
The National Autistic Society
Helpline: 0808 800 4104, 10-4 Mon-Fri
Link opens in new window www.nas.org.uk
Children & young people Parents and carers (National Autistic Society)
Link opens in new window https://tinyurl.com/y6nwgrjm

Family support (National Autistic Society)
Link opens in new window https://tinyurl.com/jua6ryx
Online resources

Warning: So-called cures and dodgy interventions (National Autistic Society, March 2019)
Link opens in new window www.autism.org.uk/about/what-is/causes/cures.aspx

What is Asperger Syndrome? (National Autistic Society)
Link opens in new window www.autism.org.uk/asperger


Autism spectrum disorder (NHS Choices)
Link opens in new window https://tinyurl.com/y8qho33a

Autism Spectrum disorders, including Asperger syndrome (Contact a Family)
Link opens in new window https://tinyurl.com/yd739qr6

Lesser-known things about Asperger's syndrome (BBC Ouch blog)
Link opens in new window www.bbc.co.uk/news/blogs-ouch-28746359


'Our position - MMR vaccine' (National Autistic Society)
Link opens in new window https://tinyurl.com/yy6gp9m2
News and events

Our resources

Freaks, geeks and Asperger syndrome The library at The Brain Charity has a range of  resources on Asperger's Syndrome and on a wide range of disability related issues.

Visit our library to read Freaks, Geeks & Asperger Syndrome: A user guide to adolescence by Luke Jackson. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Ataxia
Related to/Also known as Cerebellar Ataxia
Symptoms of Ataxia

People with Ataxia have problems with co-ordination and balance.

Cerebellar Ataxias are a group of rare neurological disorders, many of which are inherited. There is large variation in the severity of the different types, and the rate of progression varies between individuals.

Types

Cerebellar Ataxias - often designated by numbers, see the information on the Ataxia website below.

Friedreich's Ataxia (FA/FRDA) - an inherited, progressive condition, which affects the nervous system.

Ataxia-Telangiectasia - A-T is a rare, degenerative, inherited disease which affects many parts of the body and causes severe disability.

Useful national contacts Ataxia UK
Link opens in new window www.ataxia.org.uk
Helpline: 0845 644 0606
Find your local support group:
Link opens in new window https://tinyurl.com/yanv3doj
• The Ataxia NW Support Group meets at The Brain Charity
A-T Society
Supports people living with ataxia-telangiectasia
Tel. 01582 760733
Link opens in new window www.atsociety.org.uk
Children & young people  Sibling care (Ataxia UK)
Advice for young people living with someone with ataxia
Link opens in new window www.ataxia.org.uk/news/sibling-care
Education and A-T (A-T Society)
The A-T Society can offer help and guidance to Education Professionals
Link opens in new window https://tinyurl.com/yyg2b4cn
Online resources

Ataxia (NHS Choices)
Link opens in new window https://tinyurl.com/y86rqab3


About Ataxia Telangiectasia (Action for A-T)
Link opens in new window https://actionforat.org/about-us/about-a-t

News and events

The 100,000 Genomes Project is looking for people with Ataxia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Our resources

Ataxia: A Parents' Guide The library at The Brain Charity has a range of resources on Ataxia and on a wide-range of disability related issues.

You can read our copies of Ataxia UK booklets, including "Ataxia: a Parent's Guide".

Name  Attention Deficit Disorder (ADD)
Related to/Also known as  Attention Deficit Hyperactivity Disorder (ADHD)
Symptoms of Attention Deficit  Disorder
ADD is a common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness.
Useful national contacts

ADDISS
Link opens in new window www.addiss.org.uk
Tel: 020 8952 2800
Find your local support group:
Link opens in new window www.addiss.co.uk/ukgroups.htm

ADDers
Link opens in new window www.adders.org
Tel: 0871 590 3693

Children & young people  Information specifically for Teenagers (ADDers)
Link opens in new window www.adders.org/infoteens.htm
Online resources

Attention deficit hyperactivity disorder (ADHD) (NHS Choices)
Link opens in new window https://tinyurl.com/b97j45k

Attention Deficit Hyperactvity disorder (Contact A Family)
Link opens in new window https://tinyurl.com/y8ptewql

Our resources

Creating kids who can concentrate The library at The Brain Charity has a range of resources on Attention Deficit Disorder (ADD) and on a wide range of disability related issues.

Visit our library to read Creating Kids Who Can Concentrate: Proven strategies for beating A.D.D. without drugs by Jean Robb and Hilary Letts. Or have a look in your local library for this book.
Link opens in new window Find this in a library at WorldCat.org

Name Attention Deficit Hyperactivity Disorder (ADHD)
Related to/Also known as Attention Deficit Disorder (ADD)
Symptoms of ADHD A common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness.
Types  
Useful national contacts ADDISS
Tel. 020 8952 2800
Link opens in new window www.addiss.co.uk

ADDers.org
Tel. 0871 590 3693
Link opens in new window www.adders.org


ADHD Foundation
151 Dale Street, Liverpool L2 2AH
Tel. 0151 237 2661
Link opens in new window www.adhdfoundation.org.uk

Children & young people 

Information specifically for Teenagers (ADDers)
Link opens in new window www.adders.org/infoteens.htm

News and events National Parents & Carers Special Educational Needs Conference 2019, Witherslack Group In Partnership with ADHD Foundation
October 5th, 2019, Liverpool
Link opens in new window https://tinyurl.com/y6zkf8nb
Online resources

Attention deficit hyperactivity disorder (ADHD) (NHS Choices)
Link opens in new window https://tinyurl.com/y93nt8ul

Attention Deficit Hyperactivity disorder (Contact A Family)
Link opens in new window https://tinyurl.com/y7ay88xp

Our resources

Can I tell you about A.D.H.D? The library at The Brain Charity has a range of resources on ADHD and on a wide range of disability related issues.

Visit our library to read Can I tell you about ADHD? A guide for families, friends and professionals by S. Yarney and C. Martin. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Autism
Related to/Also known as Asperger's Syndrome
Symptoms of Autism

Autism is a lifelong developmental disability, which affects the way a person communicates and relates to people around them.

People with autism have difficulties with everyday social interaction, with social communication (including not understanding facial expressions and tone of voice), and with imagination. This triad of impairments can occur by itself, but is often accompanied by other developmental disorders and learning disabilities.


"The National Autistic Society is clear that there is no link between autism and the MMR vaccine."

Source: National Autistic Society https://tinyurl.com/yy6gp9m2

Types  
Useful national contacts The National Autistic Society
Link opens in new window www.autism.org.uk
Helpline: 0808 800 4104
Autism Initiatives
Link opens in new window www.autisminitiatives.org/default.aspx
Autism Concern
Link opens in new window www.autismconcern.org
Help and Advice line: 0808 808 9090
Autism Assistance Dogs
Link opens in new window https://tinyurl.com/ybqkgqea

Scottish Autism
Link opens in new window www.scottishautism.org
Tel. 01259 720 044
Autism Northern Ireland
Link opens in new window www.autismni.org
Tel. 028 9040 1729
Autism Cymru
Link opens in new window www.autism-cymru.org
Tel: 02920 463 263
Autistica
charity which funds and campaigns for research to understand the causes of autism, improve diagnosis, and develop evidence-based interventions
Link opens in new window www.autistica.org.uk
Children & young people FACT (Families of Autistic Children Together)
Link opens in new window www.factautism.org.uk

Parents and carers (National Autistic Society)
Link opens in new window https://tinyurl.com/y6nwgrjm


Family support (National Autistic Society)
Link opens in new window https://tinyurl.com/jua6ryx


Ambitious About Autism (for children and young people with autism)
Link opens in new window www.ambitiousaboutautism.org.uk
Tel. 020 8815 5444

News and Events

Blue Badge rules have changed in England for autistic people (National Autistic Society, 2019)
Link opens in new window https://tinyurl.com/ybxx4v32

'Media speculation about US President's views on autism' (National Autistic Society, February 2017)

Link opens in new window https://tinyurl.com/y5ljkh5q


'Vaccines not linked with autism, study finds' (NHS website, May 2014)
Link opens in new window https://tinyurl.com/y2yedtd9

Online resources

'Our position - MMR vaccine' (National Autistic Society)
Link opens in new window https://tinyurl.com/yy6gp9m2


Talk About Autism (online discussion forum for children and young people)
Link opens in new window www.talkaboutautism.org.uk
Your Community (National Autistic Society online discussion forum)
Link opens in new window http://community.autism.org.uk
Autism Spectrum disorders including Asperger's syndrome (Contact a Family website)
Link opens in new window http://tinyurl.com/o3laopu
Our resources

can I tell you about autism? The library at The Brain Charity has a range of resources on Autism and on a wide-range of disability related issues.

Visit our library to read Can I tell you about autism? A guide for friends, family and professionals by J. Welton and J. Telford. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Back Pain
Related to/Also known as  see also Pain, Ankylosing Spondylitis
Symptoms
Most cases of back pain are caused by strains and minor injuries, rather than more serious causes
Types
Useful national contacts BackCare
Link opens in new window www.backcare.org.uk
Versus Arthritis
Link opens in new window www.versusarthritis.org
Helpline 0800 5200 520

National Ankylosing Spondylitis Society
Link opens in new window www.nass.co.uk
Tel. 020 8948 9117
Email This email address is being protected from spambots. You need JavaScript enabled to view it.
Children & young people Back Pain in Children (Patient website)
Link opens in new window https://tinyurl.com/y6sk6wqj
Online resources New guidelines on lower back pain and sciatica (National Institute for Health and Clinical Excellence, November 2016)
Link opens in new window www.nice.org.uk/guidance/ng59
Health & Safety Executive
Link opens in new window www.hse.gov.uk/msd/backpain/livingwith.htm
Tel 0845 345 0055
Our resources

The library at The Brain Charity has a range of resources on Back Pain and on a wide range of disability-related issues.

Visit our library to read our copy of Arthritis Research UK's booklet on Back Pain.

Name Behçet's Disease
Related to/Also known as Behçet's Syndrome
Symptoms of Behçet's Disease  
Behçet's Disease is a chronic condition which happens because of disturbances in the body's immune system. The system becomes over-active and produces unpredictable outbreaks of unwanted and exaggerated inflammation. As a result, symptoms occur wherever there is a patch of inflammation, and can be anywhere where there is a blood supply, the most common outbreaks being mouth ulcers.
Types  
Useful national contacts Behçet's UK (formerly Behçet's Syndrome Society)
Link opens in new window http://behcets.org.uk
Helpline: 0845 130 7329
Children & young people  How are children affected by Behçet's? (Behçet's UK)
Link opens in new window https://tinyurl.com/y3o4qfkd
Online resources Behçet's Disease (NHS Choices)
Link opens in new window https://tinyurl.com/yav92lrn

Behçet's Syndrome (Arthritis Research UK)
Link opens in new window https://tinyurl.com/yadcpj93

Behçet's Syndrome (Vasculitis UK)
Link opens in new window www.vasculitis.org.uk/about-vasculitis/behcets-disease
Our resources

What is Behçet's Syndrome? The library at The Brain Charity has a range of resources on Behçet's Disease and on a wide range of disability-related issues.

Visit our library to read our copy of Arthritis Research UK's booklet What is Behçet's Syndrome?

Name Bell's Palsy
Related to/Also known as  
Symptoms of Bell's Palsy
Bell's Palsy is a condition in which one side of the face becomes paralysed. It is usually temporary, and the majority of cases start to get better within three months. The exact cause of Bell's Palsy is unknown, but it is believed that viral infection of the facial nerve is commonly involved.
Types  
Useful national contacts

Bell's Palsy Association
Link opens in new window www.bellspalsy.org.uk
Tel: 0870 4445 460

Facial Palsy UK
Link opens in new window www.facialpalsy.org.uk
Tel: 0300 030 9333

Children & young people  Bell's palsy in children (Facial Palsy UK)
Link opens in new window https://tinyurl.com/y5ftwyqt
News and events  
Online resources Bell's palsy (NHS Choices)
Link opens in new window https://tinyurl.com/y74d9a8e

Bell's Palsy (Facial Palsy UK)
Link opens in new window https://tinyurl.com/y956po5h
Our resources The library at The Brain Charity has a range of  resources on Bell's Palsy and on a wide range of disability-related issues.
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