|Related to/Also known as||
|Symptoms of Locked-in Syndrome
"Locked-in syndrome is a rare condition where someone is completely paralysed in all parts of their body, apart from the muscles that control eye movement. It can happen because of a number of different conditions such as traumatic brain injury, diseases of the circulatory system and stroke."
Source: Stroke Association https://tinyurl.com/y396u656
|Useful national contacts|
|Children & young people||"Parents of world's youngest locked-in syndrome sufferer, nine, reveal heartache over daughter who blinks to communicate" (Daily Mail, August 2012)
Locked-In Syndrome Information Page (U.S. National Institute for Neurological Disorders and Stroke)
Locked In Syndrome (U.S. National Organization for Rare Disorders)
|News and events||
Completely 'locked-in' patients can communicate (BBC website, February 2017)
Locked-in syndrome: rare survivor Richard Marsh recounts his ordeal (The Guardian newspaper website, August 2012)
The library at the Brain Charity has a range of resources on Locked-in Syndrome and on a wide range of disability related issues.
Visit our library to read our copy of the book Running Free: Breaking out from locked-in syndrome .