Name | Rett Syndrome |
Related to/Also known as | |
Symptoms of Rett Syndrome |
Rett Syndrome is a complex neurological disorder that mainly affects girls. It usually becomes evident in the second year of life, and leads to profound mental and physical disability. |
Types | |
Useful national contacts | Rett UK![]() Tel: 01582 798911 Find your nearest support group: ![]() Cerebra, UK charity for children with neurological disorders ![]() |
Children & young people | Family Companion (Rett UK) ![]() |
News and events | Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)![]() |
Online resources |
www.rettuk.org/covid19 Rett syndrome (NHS Choices) ![]() Rett syndrome (Contact, charity for families with disabled children) ![]() Rett Syndrome Information Page (U.S. National Institute for Neurological Disorders and Stroke)
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Our resources | ![]() The library at The Brain Charity has a range of resources on Rett Syndrome and on a wide range of disability-related issues. Visit our library to read theRett Syndrome Handbook: In words you can understand from those who understand. |