The Brain Charity

Rett Syndrome

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Name	Rett Syndrome
Related to/Also known as
Symptoms of Rett Syndrome	Rett Syndrome is a complex neurological disorder that mainly affects girls. It usually becomes evident in the second year of life, and leads to profound mental and physical disability.
Types
Useful national contacts	Rett UK www.rettuk.org Tel: 01582 798911 Find your nearest support group: https://tinyurl.com/ybvxhwze Cerebra, UK charity for children with neurological disorders http://w3.cerebra.org.uk
Children and young people	Family Companion (Rett UK) https://tinyurl.com/y3zl9so2
News and events
Online resources	Rett syndrome (NHS Choices) https://tinyurl.com/yc3pfvkh Rett syndrome (Contact A Family) https://tinyurl.com/y7rlvqbw Rett Syndrome Information Page (U.S. National Institute for Neurological Disorders and Stroke) https://tinyurl.com/yc8a8kfo
Our resources	The library at The Brain Charity has a range of resources on Rett Syndrome and on a wide range of disability-related issues. Visit our library to read Rett Disorder and the Developing Brain, edited by Dr Alison Kerr and Dr Ingegerd Witt Engerström. Or have a look in your local library for this book.

Learning disorders Children and young people Rare conditions