Rett Syndrome

Name	Rett Syndrome
Related to/Also known as
Symptoms of Rett Syndrome	Rett Syndrome is a complex neurological disorder that mainly affects girls. It usually becomes evident in the second year of life, and leads to profound mental and physical disability.
Types
Useful national contacts	Rett UK www.rettuk.org Tel: 01582 798911 Find your nearest support group: https://tinyurl.com/ybvxhwze Cerebra, UK charity for children with neurological disorders https://cerebra.org.uk
Children & young people	Family Companion (Rett UK) https://tinyurl.com/y3zl9so2
News and events	Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Online resources	The Brain Changer Arts Project (The Brain Charity) Easy-Read guide to Coronavirus from Mencap Rett UK Information, Advice & Resources – COVID-19 (Coronavirus) (Rett UK) www.rettuk.org/covid19 Rett syndrome (NHS Choices) https://tinyurl.com/yc3pfvkh Rett syndrome (Contact, charity for families with disabled children) https://tinyurl.com/u8q5y8x Rett Syndrome Information Page (U.S. National Institute for Neurological Disorders and Stroke) https://tinyurl.com/yc8a8kfo Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Rett Syndrome and on a wide range of disability-related issues. Visit our library to read theRett Syndrome Handbook: In words you can understand from those who understand.