R
Name Rett Syndrome
Related to/Also known as  
Symptoms of Rett Syndrome
Rett Syndrome is a complex neurological disorder that mainly affects girls. It usually becomes evident in the second year of life, and leads to profound mental and physical disability.
Types  
Useful national contacts Rett UK
Link opens in new window www.rettuk.org
Tel: 01582 798911
Find your nearest support group:
Link opens in new window https://tinyurl.com/ybvxhwze
Cerebra, UK charity for children with neurological disorders
Link opens in new window https://cerebra.org.uk
Children & young people Family Companion (Rett UK)
Link opens in new window https://tinyurl.com/y3zl9so2
News and events Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)
Link opens in new window https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Online resources

Link opens in new window Easy-Read guide to Coronavirus from Mencap

Rett UK Information, Advice & Resources – COVID-19 (Coronavirus) (Rett UK)
www.rettuk.org/covid19

Rett syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/yc3pfvkh
Rett syndrome (Contact, charity for families with disabled children)
Link opens in new window https://tinyurl.com/u8q5y8x

Rett Syndrome Information Page (U.S. National Institute for Neurological Disorders and Stroke)
Link opens in new window https://tinyurl.com/yc8a8kfo

 

 Living with a condition (The Brain Charity)

Our resources Rett Syndrome Handbook: In words you can understand from those who understand

The library at The Brain Charity has a range of resources on Rett Syndrome and on a wide range of disability-related issues.

Visit our library to read theRett Syndrome Handbook: In words you can understand from those who understand.