S
Name Syringomyelia
Related to/Also known as Chiari Malformation
Arnold-Chiari Malformation
Hindbrain Hernia

Symptoms of Syringomyelia

Syringomyelia is a disorder affecting the nervous system, where fluid-filled cavities develop inside the spinal cord. A variety of conditions lead to the formation of syringomyelia cavities. The most common factor is obstruction to the normal flow of CSF (cerebrospinal fluid within the spinal cord). Possible causes include Hindbrain Hernia, also referred to as Chiari Malformation, and spinal cord injury.

Symptoms vary, ranging from neck and arm pain, through to fairly severe disability, with muscle weakness and paralysis.

Types  
Useful national contacts

Ann Conroy Trust
Link opens in new window www.annconroytrust.org
Tel: 0300 111 0004
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Chiari Malformation Group: A space for you (Facebook group of the Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/y8mrr4bo

News and events  
Online resources

Chiari malformation (Brain & Spine Foundation booklet)
Link opens in new window https://tinyurl.com/ydgocl32


Arnold-Chiari malformation and driving (Gov.uk website)
Link opens in new window https://tinyurl.com/ya344pmn


Chiari Malformation (NHS Choices)
Link opens in new window https://tinyurl.com/yc9xsdch

Syringomyelia Fact Sheet (U.S. National Institute of Neurological Disorders and Stroke)
Link opens in new window https://tinyurl.com/yacac285


Syringomyelia (Contact A Family)
Link opens in new window https://tinyurl.com/y8aqg69g
Chiari malformations (Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/c5gm7rk
Chiari malformation (Medline Plus website)
Link opens in new window http://tinyurl.com/ngd5www
Our resources Chiari & Syringomyelia: A handbook for patients and their families

The library at The Brain Charity has a range of  resources on Syringomyelia and on a wide range of disability-related issues.

This includes copies of the booklet "Chiari & Syringomyelia: A handbook for patients and their families", by the American Syringomyelia & Chiari Alliance Project (ASAP).

Or you can download a PDF copy of this booklet from the ASAP website.